15 January 2024
Implementation Seminar: Health literacy, shared decision making and health inequalities:
What do we know and what can we do better?
Health litercay, shared decision making and health inequalities will be introduced and recent literature will be presented. Current challenges and future directions for research and implementation will be discussed.
Marie-Anne Durand is a Health Psychologist with a Doctoral Degree in Medicine and a longstanding interest in evidence-based public health and applied health services research. Over the past 15 years, she has developed research and evaluation expertise in communication in healthcare, health disparities research, clinical trials, and implementation science. She is a Inserm Public Health Researcher (CRCN) in France (INSERM, University Toulouse III Paul Sabatier). She is also Adjunct Associate Professor at the Dartmouth Institute for Health Policy and Clinical Practice, USA, Adjunct Scientist at Unisanté, a Primary Care Academic Center in Lausanne, Switzerland and a Consultant for EBSCO Health, USA. Her primary research interests lie in intervention research on healthcare communication (including shared decision making), with a focus on socially disadvantaged populations, health disparities, health literacy, and implementation science.
28 September 2023
Implementation Seminar: Achieving shared decision making in routine practice: tools, challenges and solutions
Natalie will present the latest evidence on ways to embed shared decision making part of routine care. The talk will cover some of the tools that can help you to achieve shared decision making in practice. It will cover some of the common challenges faced when trying to embed this in routine care settings and present some solutions that can help. Following the talk will be the opportunity to discuss these and ask questions about embedding shared decision making in your teams.
Dr Natalie Joseph-Williams is a Senior Lecturer in Improving Patient Care at Cardiff University School of Medicine and Associate Director for the newly established Health and Care Research Wales Evidence Centre.
Natalie has over sixteen years experience of researching, teaching, and implementing shared decision making, working closely with policy makers, healthcare organisations, clinical teams, and patients across the UK to embed this approach into routine clinical care. She leads the Evidence Based Medicine course for MBBCh students at Cardiff University, with a focus on effectively communicating the evidence to patients to reach shared and informed decisions and runs similar training programmes for healthcare professionals.
Natalie has a strong track record of publications in this area and impact; informing NHS and international healthcare policy, a national shared decision making training programme for health care professionals, and both national and international guidelines on shared decision making and risk communication.
12 July 2023
Implementation Seminar: A new educational concept for SDM in primary
Training health care professionals in shared decision-making (SDM) is considered as conditional for prolonged engagement with SDM in their clinical encounters. A longitudinal process of applied learning in clinical practice is essential to achieve sustainable implementation of SDM.
In an Educational Design Research (EDR) study, we developed an SDM curriculum for GP clinical workplace learning and evaluated learning outcomes. In this interactional presentation, insight will be provided in the process of iteratively developing, evaluating and adapting the SDM curriculum, educational goals, didactic principles and supportive educational tools for SDM. Interactive assignments will be used to understand how to transfer the principles of this SDM curriculum to design a local SDM curriculum and how to evaluate the alignment in educational practice. We will discuss the shift of educational interventions’ evaluation methods from only focusing on learning outcomes, to understanding how and why the intervention works. Participants are invited to reflect on the implications of our lessons learned and conducting EDR in their own context.
Angelique Timmerman, psychotherapist, works as an assistant professor at the department of Family Medicine, residing at the GP speciality-training programme. Her current research is in the field of training and assessment of doctor patient communication, coaching in self-regulated learning, and workplace based learning. She is experienced in working with qualitative research methodologies and educational design based research. In the GP specialty-training programme, she works as a curriculum developer and trainer in communication skills.
19 January 2023
Implementation Seminar: Health information and decision aids by the Institute for Quality and Efficiency in Health Care (IQWiG)
The Institute for Quality and Efficiency in Health Care (IQWiG) provides health information for the general public via a bilingual website (gesundheitsinformation.de/informedhealth.org). It also has developed a number of decision aids for screening and treatment decisions. Core elements of the process are a systematic literature search / evidence assessment, involvement of stakeholders and user testing of the drafts. Results of user testing show good acceptance. Usage of the website has been steadily growing. The decision aids are implemented in health care processes, for example as part of the organized cancer screening program in Germany.
Dennis Fechtelpeter works as a medical writer in the Health Information Department of IQWiG (Institute for Quality and Efficiency in Health Care). He is a trained nurse and has degrees in health communication and nursing science. IQWiG is a professionally independent, scientific institute that assesses the advantages and disadvantages of medical procedures for decision-making bodies of the German health care system.
02 December 2022
Implementation Seminar: The Patient University to enhance Health Literacy and Empowerment
The Patient University at Hannover Medical School, founded in 2005, aims to improve empowerment and health literacy of patients and citizens. We provide knowledge about health and health care, patients’ rights, navigation in the health care system, or evidence-based patient information. We will discuss the concept, the acceptance, the outreach and future developments, i.e. in digital health.
Prof. Dr. Marie-Luise Dierks
Educational scientist, since 2004 Professor of Public Health at the Hannover Medical School (MHH), co-initiator and head of the Patient University at the MHH, head of the research unit “Patient orientation and Health Education”
Research topics: Empowerment and health literacy, patient satisfaction, quality of patient information and advice, empowerment, strengthening of self-management skills and digital competence in people with chronic diseases, effects of patient participation in support groups
13 September 2022
Virtual research seminar on “Researching Patient-centered care
in Latin America”
Researchers from three different Latin American countries will give us insights into their research and experiences. Please find out more about the speakers below.
Paula Riganti (Argentina), Is a family Physician in Buenos Aires, Argentina. Holds a master’s in medical education from Cardiff University. She is part of the research group on Shared Decision Making of the Italian Hospital of Buenos Aires.
Germán Málaga (Peru)
Is a Senior Professor at the Universidad Peruana Cayetano Heredia, Lima, Peru and an internist with more than 25 years of experience. His research interests are chronic diseases, research implementation and the search for inclusive and democratic health systems. An important part of his work has been to promote the participation of patients in health care, thus improving adherence to treatment and seeking to reform the health system from the community level.
Paulina Bravo (Chile)
Is an Associate Professor at the School of Nursing of the Pontificia Universidad Católica de Chile. Her background is in mental health nursing and completed her postdoctoral training at the School of Social Sciences and Medicine at Cardiff University. Paulina leads the research team for patient-centered care and shared decisionmaking. She is the Director of Patient Involvement at the Cancer Center Fundación Arturo López Pérez in Santiago.
18 May 2022
Virtual research seminar on the “Benefits and risks of patient participation in multidisciplinary tumor conferences – findings of the mixed methods PINTU study” with Prof. Dr. Lena Ansmann1
Background: Previous research in breast cancer centers throughout Germany revealed that between 5 to 7% of patients have participated in MTCs during their own case discussion (e.g. Ansmann et al. 2014). Research on this phenomenon and its benefits and risks is rare. The PINTU study (Heuser et al. 2019) aimed to fill this gap by answering the following research questions: A) How do the providers perceive participation of patients in MTCs with regard to feasibility and quality of decision-making? B) How do MTCs with and without patient participation differ with regard to organisation, interaction and patient orientation? C) How do patients experience the participation and what direct cognitive and emotional effects can be observed?
Method: This is an exploratory, observational, prospective multicenter study using mixed methods. MTCs with and without patient participation in 6 breast and gynaecological cancer centres in Germany were examined. Data collection included: (1) interviews with providers, (2) videotaped or audiotaped participatory observations in MTCs, (3) patient surveys.
Results: The main findings of the study will be summarized: (1) The way patient participation is implemented varies strongly by center. (2) Feasibility in routine care is limited. (3) Most patients experienced patient participation in MTC as positive, whereas some patients reported negative experiences. (4) Providers experienced and expected a mix of benefits and risks of patient participation. (5) The implementation of shared decision making in MTCs seemed difficult under the current circumstances. (6) The development of patient-reported experiences and outcomes over time did not show substantial differences between patients with or without patient participation.
Implications: The way patient participation is implemented seems to vary greatly. The results show a mixed picture of positive and negative experiences of providers and patients, but also clear limitations regarding shared decision making in MTCs. The prospective study further revealed that patient participation seems to neither improve nor worsen patient-reported experiences or outcomes. The next urgent questions to be answered before recommendations for or against patient participation in MTCs can be made are: Which patients could benefit from participation in MTCs? How can MTC participation be arranged for the patient’s benefit?
- Ansmann L et al. (2014). Patient participation in multidisciplinary tumor conferences. Breast 23 (6):865-869.
- Heuser C, et al. (2019). Patient participation in multidisciplinary tumour conferences in breast cancer care (PINTU): a mixed-methods study protocol. BMJ open 9 (4): e024621.
1Carl von Ossietzky Universität Oldenburg
27 January 2022
Virtual research seminar on the “Guideline for Good Practice in Risk Communication During a Health Crisis” with Paulina Bravo, Ph.D.1 & Alejandra Martínez, Ph.D.1.
Background: The COVID-19 pandemic has brought a high volume of technical and complex information to the population. In Chile, the pandemic has shown a lack of preparation of health teams and the health authority on how to communicate the risk associated with COVID-19.
Aim: To develop a “Guideline for Good Practice in Risk Communication during a health crisis health” for the Chilean context.
Method: A mixed methods study was conducted. We carried out a systematic review and semi-structured interviews with international experts to identify effective practices on risk communication. This informed a preliminary version of the Guideline. This Guideline was assessed and modified through a Delphi study with national experts. Finally, cognitive interviews with citizens were conducted to assess, and construct validity of a checklist proposed in the Guideline.
Results: The Guideline provides recommendations for developing a timely and effective risk communication strategy during health crises. These recommendations are divided into designing the message and communicating the message. When designing the message, it is essential to define what and why we want to communicate, with whom we wish to share it, and how it will be communicated. When communicating the message special attention must be given to the communication channels, the messenger (level of preparation, and criteria for his/her selection), and the frequency of the information. The Guideline also provides a checklist for evaluating health messages during crises. It is expected that this checklist will help to establish improvement plans and identify critical points that should be considered to increase the effectiveness of a communication strategy.
1School of Nursing, Pontificia Universidad Católica de Chile
11 November 2021
Virtual research seminar on the “Development and refinement of the integrative model for patient-centeredness” with PD Dr. Isabelle Scholl1 and Dr. Pola Hahlweg1.
The research seminar will provide an insight into the aims and activities of PCC NET, and an overview of the development of the integrative model of patient-centeredness (Scholl et al., 2014). During the first part of the event, we will welcome new members to the network. In small groups, there will be time for personal exchange. During the second part of the event, Isabelle Scholl and Pola Hahlweg will present the integrative model of patient-centeredness and related completed and ongoing research projects (Zeh et al., 2019, 2021; Zill et al. 2015). Questions and thoughts on the presentation will be discussed in the plenum.
Scholl I, Zill JM, Härter M, Dirmaier J. An integrative model of patient-centeredness – a systematic review and concept analysis. PloS one. 2014;9(9):e107828.
- Zeh S, Christalle E, Hahlweg P, Härter M, Scholl I. Assessing the relevance and implementation of patient-centredness from the patients’ perspective in Germany: results of a Delphi study. BMJ open. 2019 Dec 1;9(12):e031741.
- Zill JM, Scholl I, Härter M, Dirmaier J. Which dimensions of patient-centeredness matter?-Results of a web-based expert delphi survey. PloS one. 2015 Nov 5;10(11):e0141978. “
1University Medical Center Hamburg-Eppendorf (UKE), Germany
30 September 2021
Virtual research seminar “Development, evaluation and implementation of patient-centered communication skills training for nurses” with Prof. Dr. Dr. Martin Härter1 and PD Dr. Isabelle Scholl1
Abstract: There is a high demand for better implementation of communication skills trainings for nursing professionals that are needs-based and thoroughly evaluated. Yet, there is currently a lack of such trainings in continuing education in Germany.
Aim: Therefore, the aim of this study is to develop, evaluate and implement a needs-based communication skills training for nursing professionals.
Methods: This study will be performed using a mixed-methods approach. In the first phase, qualitative interviews and focus groups with relevant stakeholders will be conducted in order to assess the specific needs regarding communication skills trainings for nursing professionals. A content analysis of the qualitative data will be performed. In the second phase the training developed according to the needs of the relevant stakeholders will be carried out and evaluated. Multivariate analysis methods and descriptive statistics will be used to evaluate the data. During the third phase, expert workshops will be conducted and recommendations for further implementation of the developed communication skills training will be derived.
Expected results: From the first phase we expect to obtain information on the needs of the relevant stakeholders. We assume that the training conducted in the second phase will improve perceived self-efficacy and communication skills of the nursing professionals. We expect to be able to derive recommendations for further implementation of the communication skills training at the end of the third phase.
1University Medical Center Hamburg-Eppendorf (UKE), Germany
30 June 2021
Virtual research seminar with Dr. Paulina Bravo1 and Alejandra Martínez1 introducing their research on risk communication during health crisis.
Abstract: International experts views on best practices for health risk communication.
Background: The COVID-19 pandemic has meant a high volume of technical and complex information to be communicated to the population. In Chile, the lack of preparation of the teams and the health authority on how to communicate the risk associated with COVID-19 could explain the increasing number of disease cases.
Aim: This presentation aims to identify best practices for health risk communication.
Methods: This study used a qualitative design based on interviews with international experts with experience in crisis management or risk communication. A content analysis was performed.
Results: Four men and six women took part of the study (three from Europe, two from Latin America, two from North America, one from Asia, two from Oceania). International experts highlighted key components of the message during a health crisis (credibility, timing, and transparency) and the need to innovate when a crisis continues overtime so the audience fatigue is prevented. These findings could inform guidelines to best equip countries for a clear communication strategy for future crises.
1School of Nursing, Pontificia Universidad Católica de Chile
27 January 2021
Virtual kick-off event of PCC NET with presentations on the following topics:
- Introduction to the Chilean health care system by Dr. Paulina Bravo1 and Alejandra Martínez1
- Introduction to the German health care system by Prof. Dr. Dr. Marin Härter2 and Dr. Isabelle Scholl2
- Presentations on current, past, or planned projects of the Chilean and German research teams:
- Promoting Patient Participation in Care: Transferring knowledge on patient-centered research, education, and clinical practice (PRO-PACT) by Alejandra Martínez1 and Anne Klimesch2
- Assessment of Patient-Centeredness from the Patients‘ Perspective (ASPIRED) by Stefan Zeh2
- Evaluation of a Program for Routine Implementation of Shared Decision-Making in Cancer Care: A Stepped Wedge Cluster Randomized Trial (PREPARED) by Dr. Pola Halweg2
- CarePreg: Person-centeredness in healthcare and support services for women with unwanted pregnancy by Dr. Jördis Zill2 and Lara Reck2
- Development, dissemination and evaluation of patient information material to reduce misuse and dependence of Benzodiazepines and z-drugs by Dr. Christina Lindemann2 and Johanna Heeg2
1School of Nursing, Pontificia Universidad Católica de Chile
2University Medical Center Hamburg-Eppendorf (UKE), Germany